Ethical governance of biobanking and genomic research

A/Professor Andrew Crowden1, Professor John Devereux2, Dr Julian Lamont.3

1 School of Historical and Philosophical Inquiry, University of Queensland, St Lucia, Qld 4072, Australia.
2.T.C. Beirne School of Law, University of Queensland, St Lucia, Qld 4072, Australia.
3 School of Historical and Philosophical Inquiry, University of Queensland, St Lucia, Qld 4072, Australia.

This presentation is a summary of a discussion paper that was written as part of the University of Queensland Genomics in Society: Policy and Ethics Project. The current state of ethical and legal governance of biobanking and genomic research was audited, reviewed and analysed in response to a research question that asked if Australia’s existing institutional and regulatory arrangements are sufficiently robust and flexible to account for the uncertainties and risks posed by public health genomics?  Relevant documents, frameworks, guidelines, and statements that influence and guide the ethical and legal governance of biobanks and genomic research were identified and examined. The review discovered how biobanking governance and policy has been, and is, articulated across different jurisdictions and policy categories, with reference to international, national, state and territory, and local health service levels. The project included consideration of culturally appropriate guidelines developed by Indigenous peoples, including Maori and Aboriginal and Torres Strait Islanders.  A clear picture of the biobank governance policy environment in Australia will be outlined and a preferred practical ethical governance framework will be identified and defended.


Biography

A/Prof Andrew Crowden is at the School of Historical and Philosophical Inquiry, University of Queensland.

About the Association

The Australasian Association of Bioethics and Health Law (AABHL) was formed in 2009.

It encourages open discussion and debate on a range of bioethical issues, providing a place where people can ask difficult questions about ideas and practices associated with health and illness, biomedical research and human values.

The AABHL seeks to foster a distinctive Australasian voice in bioethics, and provide opportunities for international engagement through its membership, journal and conferences.

Members come from all the contributing humanities, social science and science disciplines that make up contemporary bioethics.

Many members have cross-disciplinary interests and all seek to broaden the dialogues in which all members of the wider community ultimately have an interest.

The AABHL is a supportive, creative and challenging community that provides a rich source of continuing academic refreshment and renewal.

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