Global Conversations on Data Governance

This panel brings together diverse perspectives on the ethics and governance of data-intensive health and medical research. The session is structured in two parts. In the first part, panellists will discuss the fundamental values that should guide the collection, storage, use and sharing of health related data, and the barriers that need to be overcome to enact responsible and trustworthy governance. In the second part, panelists will discuss a case vignette to disentangle the obligations and fiduciary responsibilities of commercial vendors collecting health data, including those that partner with public/government data-driven initiatives.


Panelists:

Natalia Evertsz

Natalia is a final year medical student with a research interest in issues of social justice and equity in global health research. Supervised by Dr Bridget Pratt, her current research areas include community engagement in health research priority-setting, and equity in data-sharing practices.

 

 

 

Jeannie Paterson

Jeannie Marie Paterson teaches and researches in the fields of consumer protection law, consumer credit and banking law, and AI and the law.

Jeannie’s research covers three interrelated themes:

  • The relationship between moral norms, ethical standards and law
  • Protection for consumers experiencing vulnerability
  • Regulatory design for emerging technologies that are fair, safe, reliable and accountable.

Jeannie has published widely on these research topics in leading journals and edited collections, including as the co-editor, with Elise Bant, of Misleading Silence (2020).  Jeannie is also the co-author of a number of leading textbooks: (with Andrew Robertson) Principles of Contract Law (6th ed, 2020), Corones’ Australian Consumer Law (2019) and (with Hal Bolitho and Nicola Howell) Duggan and Lanyon on Consumer Credit Law (2020). Her scholarly work has been cited by courts, including the High Court of Australia and the Supreme Court of Canada.

Dianne Nicol

Dianne Nicol is a distinguished professor of law at the University of Tasmania in Australia. Her research interests focus on the interface between law, ethics and biomedicine. Among her other roles, she is chair of the National Health and Medical Research Council Embryo Research Licensing Committee and a member of the Australian Genomics Health Futures Mission Expert Advisory Committee. She is a fellow of the Australian Academy of Law and the Australian Academy of Health and Medical Sciences. Dianne is Director of the Centre for Law and Genetics (CLG) at the University of Tasmania. Dianne’s current research focuses primarily on the regulation and governance of personalized medicine, genomic data sharing, biobanking, genome editing and other emerging technologies, together with commercialisation of biotechnology and patenting of biotechnological inventions.

 

Megan Richardson

Megan Richardson is a Professor of Law at the Melbourne Law School, the University of Melbourne, and a Chief Investigator in the multi-institution ARC Centre of Excellence for Automated Decision-Making and Society. Her fields of research and publication include intellectual property, privacy and personality rights, law reform and legal theory. She was one of a group of scholars convened by the Australian Law Reform Commission to explore the meaning of ‘privacy’ for its 2006-8 privacy reference, and in addition served on the international advisory panel for the New South Wales Law Reform Commission’s invasion of privacy review in 2006-2009. She was also a member of the advisory committee for the Australian Law Reform Commission’s reference on Serious Invasions of Privacy in the Digital Era (report published 2014).

 

Ponnampalam Gopalakrishnakone

Appointment: Professor
Cluster: Health and Social Sciences
Office Address: Level 3, University Resource Centre
Office Tel Number: 6592 6797
Email Address: Gopal.Krishnakone@SingaporeTech.edu.sg
Academic Qualifications
• DSc, National University of Singapore, 1998
• PhD in Physiology, University of London, 1979
• MBBS, Faculty of Medicine, University of Ceylon, 1971

 

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