AEN Conference

AEN CONFERENCE 2018: PRE CONFERENCE WORKSHOPS

A selection of workshops will be held at the venue as part of the incoming AEN conference on Wednesday 26th September and AABHL Delegates are welcome to attend. 

Workshop fees are an additional cost to both AABHL and AEN delegates.  To book click HERE

Facilitators: Professor Ian Kerridge and Professor Paul Komesaroff

This workshop will cover: Capacity to consent: Own consent; substitute decision maker for adults consent; parental / legal guardian consent. Approaches to consent: full consent; opt out; waiver of consent. Ascertaining level of risk and consent. Consent in different situations, e.g online research. Further information will be advised when available.

Facilitators: Dr Jillian Barr and Ms Anne Walsh

This workshop will cover: Update on Australian Code for the Responsible Conduct of Research. Managing misconduct – how to address problems that arise. How to facilitate adequate monitoring of studies. Further information will be advised when available.

Facilitators: Dr Conor Brophy and Ms Sara Potts

The purpose of the workshop is to provide Human Research Ethics Committee (HREC) Members, HREC Administrators and those involved with the planning, conduct and review of research involving humans with a deeper understanding of the purpose and function of an HREC and their role within these committees. The workshop is designed to provide an opportunity for stakeholders to engage with facilitators experienced in ethical deliberation on research and their peers in a supportive learning environment. The workshop will focus on the National Statement and other relevant guidance by means of practical consideration of research ethics application and the role of the HREC and researchers in applying this guidance.

Facilitators: A/Professor Andrew Crowden and Dr Richard Roylance

It is reasonable to expect that contemporary genomic data governance arrangements should be developed to respect humans and non-human animals, promote fair distribution of benefits, foster trust, reciprocity and integrity while offering support to the advancement of research and scientific knowledge. If governance is inclusive, sustainable and responsive to current and future scientific developments then it is likely to be practically useful and ethical. Many will benefit. In this workshop, key challenges associated with the ethical governance of new [global] hybrid genomic data infrastructures (including genomic biobanks) will be identified and briefly discussed. Participants will have the opportunity to consider cases and make suggestions in response to practical examples. The Australian context is used as an initial focus for discussion. However, the claims and suggestions are applicable anywhere. They are particularly pertinent to situations where the scientific reliance on new hybrid genomic data infrastructures is outpacing considered ethical analysis.

Facilitators: TBC

This workshop will cover: How to conduct consumer engagement. Reflecting on different population sizes in research depending on research location . Ethical consideration when conducting research with First Nations peoples. Update on revised Aboriginal and Torres Strait Islander research ethics guidelines document.