2021 Oral Presentation – Research Ethics

Professor Angus Dawson1, Dr Neha Faruqui1 1Sydney Health Ethics, University of Sydney, Australia This paper reports and discusses the findings from a critical interpretative review of over thirty ethics guidelines that included discussion of health research with young people (defined,...
  • July 15, 2021
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Dr Muralidharan Anantharaman1, Dr Owen Schaefer1, Ms Tess Johnson2, Professor Julian  Suvalescu2 1National University Of Singapore, , Singapore, 2University of Oxford, Oxford, United Kingdom The development of some COVID-19 vaccines by private companies like Moderna and Sanofi-GSK has been partly...
  • July 15, 2021
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Ms Josephine Johnston1 1University Of Otago, Dunedin, New Zealand So called “chimera” research is accelerating. Rapid advances in stem cell science and new gene editing techniques are enabling researchers to more extensively and precisely insert human cells—and self-organizing structures derived...
  • July 13, 2021
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Ms Matilda Handsley-Davis1 1University Of Adelaide, Adelaide, Australia, 2ARC Centre of Excellence for Australian Biodiversity and Heritage (CABAH), Wollongong, Australia Program stream: Research ethics (or possibly health law?) The human microbiome – the collection of microscopic organisms living in and...
  • July 13, 2021
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Professor Margaret Otlowski1 1University Of Tasmania, Hobart, Australia Public trust is widely recognised as a key consideration in shaping public attitudes to genomic data sharing (GDS). This ARC-funded study investigates factors affecting trust in GDS using an empirically validated set...
  • July 13, 2021
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Ms Natalia Evertsz1 1University Of Melbourne, Melbourne, Australia Background: Despite growing consensus on the need for equitable data-sharing, there has been limited discussion about what this entails. Due to their familiarity with contextual challenges to equity, the perspectives of low-...
  • July 13, 2021
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Mr Daniel Duke1,2, Associate Professor  Luke  Burchill1,2 1The University Of Melbourne, Parkville, Australia, 2Melbourne Academic Centre for Health (MACH), Parkville, Australia The purpose of this presentation is to outline the theoretical basis of a new Culturally Adaptive Governance Framework (CAGF)...
  • July 13, 2021
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Dr Chase Schultz-Swarthfigure1, Professor Anne-Marie Kelly1, Associate Professor Deborah  Zion2 1Western Health, Melbourne, Australia, 2Victoria University, Melbourne, Footscray, Australia Background: Health research often uses personal health information (PHI). Conditions under which PHI can be used for the secondary purpose of...
  • July 12, 2021
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Dr Bridget Pratt1 1Australian Catholic University, Australia Community engagement (patient and public involvement) is gaining prominence in health research worldwide. But there remains limited ethical guidance on how to share power with communities in health research priority setting, particularly that...
  • July 12, 2021
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